Dismissed during his probationary period while supporting his family through a medical crisis, a devoted father refuses to leave his son’s side as the four-month-old continues his courageous fight in intensive care.
A Devastating Choice Between Family and Employment
When newborn baby Lohan was rushed straight to intensive care on the day he was born, his father, Felipe, faced an impossible choice. With the baby’s mother, Lohany, recovering from a C-section and unable to stay at the hospital for extended periods during those crucial first days, Felipe stepped in.
“Someone had to be there for him,” the family shared. “Felipe chose to stay with his son.”
Despite providing official medical documentation and explaining the severe circumstances to his employer, Felipe was dismissed during his probationary period after taking time off to remain at the hospital.
Four Months in Intensive Care: Understanding “Butterfly Skin Disease”
Now four months old, little Lohan has known only the inside of a hospital room.
Born struggling to breathe, he was diagnosed with epidermolysis bullosa, a rare genetic condition commonly referred to as “butterfly skin disease” because it leaves the skin as fragile as a butterfly’s wings. For infants with this condition, even gentle contact causes painful blisters, wounds, and skin breakdown.
Lohan’s four-month journey has been filled with constant medical hurdles:
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Respiratory & Nutritional Support: Required mechanical breathing assistance and underwent surgery to allow tube feeding.
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Fighting Infections: Completed seven rounds of antibiotics to battle recurring infections.
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Healing Fragile Skin: His hands and feet remain severely affected, and his face frequently develops wounds from instinctively touching himself—a habit present since before birth.
A Light in the Dark: Lohan’s Resilient Spirit
Despite months of invasive procedures, Lohan’s family says his personality shines through his pain.
“He smiles at everyone,” a relative shared. “If someone talks to him, he tries to respond. When cartoons are playing, he watches them with complete fascination.”
These small moments of joy sustain his parents, who are now navigating overwhelming financial hardship. Seven family members currently share a single-room house with no stable income. While Lohany earns occasional money doing hair and nails, the family relies on relatives to help afford basic everyday expenses, let alone the ongoing costs of diapers, specialized non-stick dressings, and transportation.
While a crib sits ready in his family’s home, Lohan remains under hospital care, waiting for the day he can finally step outside those doors into his parents’ arms.